Race, ethnicity, sex, primary language, disability - Health and Human Services (HHS) panel [HHS.ACA Section 4302]
HHS on Oct. 31, 2011, published final standards for data collection on race, ethnicity, sex, primary language and disability status, as required by Section 4302 of the Affordable Care Act [PDF | 1.6 MB].
The law requires that data collection standards for these measures be used, to the extent practicable, in all national population health surveys. They will apply to self-reported information only. The law also requires any data standards published by HHS comply with standards created by the Office of Management and Budget (OMB).
Proposed standards were published on June 29, 2011, and public comments were accepted until August 1, 2011.
The standards, effective upon publication today, apply to population health surveys sponsored by HHS, where respondents either self-report information or a knowledgeable person responds for all members of a household. HHS will begin implementation of these new data standards in all new surveys and at the time of major revisions to current surveys.
Source: Health and Human Services
HHS examined current Federal data collection standards adequacy of prior testing, and quality of the data produced in prior surveys; consulted with statistical agencies and programs; reviewed Office of Management and Budget (OMB) data collection standards and the Institute of Medicine (IOM) Report Race, Ethnicity, and Language Data Collection: Standardization for Health Care Quality Improvement and built on its members' experience with collecting and analyzing demographic data I ii. HHS also paid special attention to current data collection policies for major HHS surveys and those of the Census Bureau.
The following criteria guided the development of data standards for each of the five required variables:
1. Evidence-based and demonstrated to have worked well in practice for national survey data collection.
2. Represent a minimum data standard, with agencies permitted to collect as much additional detail as desired, provided that the additional detail could be aggregated back to the minimum standard.
3. Standards mandated by Office of Management and Budget (OMB) would serve as the starting point for any minimum standard.
4. Standards would be for person-level data collection, where respondents either self-report information or serve as the most knowledgeable respondent for all persons in a household survey.
Source: Health and Human Services
Details for each LOINC in Panel LHC-Forms
|LOINC||Name||R/O/C||Cardinality||Example UCUM Units|
|69919-9||Race, ethnicity, sex, primary language, disability - Health and Human Services (HHS) panel [HHS.ACA Section 4302]|
|Indent69854-8||Are you hispanic, latino-a, or of spanish origin?|
|Indent69855-5||What is your race?||1..14|
|Indent68503-2||How would you rate your ability to speak and understand English OR How well do you speak English?|
|Indent69856-3||Are you deaf, or do you have serious difficulty hearing?|
|Indent69857-1||Are you blind, or do you have serious difficulty seeing, even when wearing glasses?|
|Indent69858-9||Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions?|
|Indent69859-7||Do you have serious difficulty walking or climbing stairs?|
|Indent69860-5||Do you have difficulty dressing or bathing?|
|Indent69861-3||Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a physician's office or shopping?|
- Race, ethnicity, sex, primary language, disability - Health & Human Services (HHS) panel
- HHS.ACA Section 4302
- First Released
- Version 2.40
- Last Updated
- Version 2.44
- Panel Type
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