Version 2.70

63032-7PhenX - social networks protocol 211101Trial

Status Information


Term Description

The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.
Source: Regenstrief LOINC

Panel Hierarchy
Details for each LOINC in Panel LHC-Forms

LOINC Name R/O/C Cardinality Example UCUM Units
63032-7 PhenX - social networks protocol 211101
Indent54125-0 Patient name
Indent67745-0 From which name generator was this person mentioned?
Indent67746-8 Person [PhenX]
Indent67747-6 Section name generator
Indent46098-0 Sex
Indent30525-0 Age R a
Indent67286-5 If yes, what is his/her relationship to you?
Indent67653-6 How close are you to this person?
Indent67654-4 How often do you see or talk to the person?
Indent67655-1 Do they trust doctors to take care of people's problems?
Indent67656-9 Has this person done any of the following for you or helped you out?
Indent67657-7 Does this person hassle you, cause you problems, or make your life difficult?

Fully-Specified Name

PhenX - social networks protocol 211101

Additional Names

Short Name
Social networks proto

Survey Question


Basic Attributes

First Released
Version 2.36
Last Updated
Version 2.66
Change Reason
Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
Panel Type

Reference Information

Type Source Reference
Citation Consensus measures for Phenotypes and Exposures U.S. Department of Health and Human Services, National Institutes of Health, National Institute for Mental Health, Institute for Social Research, & Indiana University. The Indianapolis Network Mental Health Study (INMHS), 1990–1991.
Article Consensus measures for Phenotypes and Exposures Perry, B. L., & Pescosolido, B. A. (2010). Functional specificity in discussion networks: The influence of general and problem-specific networks on health outcomes. Social Networks, 32(4), 345–357.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K.M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science and Medicine, 46(2), 275–286.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B., & Wright, E. (2004). The view from two worlds: The convergence of social network reports between mental health clients and their ties. Social Science and Medicine, 58, 1795–1806.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B. A., Wright, E. R., Alegr¿ M., & Vera, M. (1998). Social networks and patterns of use among the poor with mental health problems in Puerto Rico. Medical Care, 36(7), 1057–1072.
Article Consensus measures for Phenotypes and Exposures Stein, C. H., Rappaport, J., & Seidman, E. (1995). Assessing the social networks of people with psychiatric disability from multiple perspectives. Community Mental Health Journal, 31, 351–367.
Article Consensus measures for Phenotypes and Exposures Wright, E. R., & Pescosolido, B. A. (2002). "Sorry, I forgot": The role of recall error in longitudinal, personal networks studies. Social Networks and Health, 8, 113–129.

Member of these Panels

LOINC Long Common Name
63009-5 PhenX domain - Social environments

Member of these Groups

LG41768-9 SDH.Community

Language Variants Get Info

zh-CNChinese (China)
PhenX - 社交网络方案 211101:-:时间点:^患者:-:PhenX
it-ITItalian (Italy)
PhenX - social network, protocollo:-:Pt:^Paziente:-:PhenX
ru-RURussian (Russian Federation)
PhenX - социальные связи протокол:-:ТчкВрм:^Пациент:-:PhenX

LOINC FHIR® API Example - CodeSystem Request Get Info