Version 2.80

Status Information

Status
TRIAL

Term Description

Self-administered questionnaire contains 50 items and 76 weighted responses divided into three components: Symptoms (frequency and severity); Activity (activities that cause or are limited by breathlessness); and Impacts (social functioning, psychological disturbances resulting from airways disease). The protocol is designed to measure health impairment in patients with asthma and chronic obstructive pulmonary disease (COPD). It is also valid for use in bronchiectasis and has been used successfully in patients with kyphoscoliosis and sarcoidosis.

Reference Information

Type Source Reference
Citation Consensus measures for Phenotypes and Exposures St. George's Respiratory Questionnaire, English Version, 3 months. Developed by Paul Jones at St. George's Hospital in London in 1990.
Article Consensus measures for Phenotypes and Exposures Jones, P. W., Quirk, F. H., & Baveystock, C. M. (1991). The St. George's Respiratory Questionnaire. Respiratory Medicine, 85 (Supplement 2), 25-31.
Article Consensus measures for Phenotypes and Exposures Jones, P. W., Quirk, F. H., Baveystock, C. M., & Littlejohns, P. (1992). A self-complete measure for chronic airflow limitation - The St George's Respiratory Questionnaire. American Review of Respiratory Disease, 145, 1321-1327.
Article Consensus measures for Phenotypes and Exposures Meguro, M., Barley, E. A., Spencer, S., & Jones, P. W. (2006). Development and validation of an improved COPD-specific version of the St George's Respiratory Questionnaire. Chest, 132, 456-463.

Panel Hierarchy

Details for each LOINC in Panel LHC-Forms

LOINC Name R/O/C Cardinality Example UCUM Units
62630-9 PhenX - respiratory - quality of life protocol 091301
Indent64438-5 How do you describe your current health?
Indent64439-3 Over the past 3 months, I have coughed:
Indent64440-1 Over the past 3 months, I have brought up phlegm (sputum):
Indent64441-9 Over the past 3 months, I have had shortness of breath:
Indent64442-7 Over the past 3 months, I have had attacks of wheezing:
Indent64443-5 During the past 3 months, how many severe or very unpleasant attacks of chest trouble have you had? {#}/(3.mo)
Indent64444-3 How long did the worst attack of chest trouble last? d;wk;mo;a
Indent64445-0 Over the past 3 months, in an average week, how many good days (with little chest trouble) have you had? d/wk
Indent64446-8 If you have a wheeze, is it worse in the morning?
Indent64447-6 How would you describe your chest condition?
Indent64448-4 If you have ever had paid employment.
Indent65641-3 Activity that usually makes you feel breathless these days [PhenX]
Indent65642-1 This activity usually makes you feel breathless these days [PhenX]
Indent64449-2 My cough hurts.
Indent64450-0 My cough makes me tired.
Indent64451-8 I am breathless when I talk.
Indent64452-6 I am breathless when I bend over.
Indent64453-4 My cough or breathing disturbs my sleep.
Indent64454-2 I get exhausted easily.
Indent64455-9 My cough or breathing is embarrassing in public.
Indent64456-7 My chest trouble is a nuisance to my family, friends or neighbors.
Indent64457-5 I get afraid or panic when I cannot get my breath.
Indent64458-3 I feel that I am not in control of my chest problem.
Indent64459-1 I do not expect my chest to get any better
Indent64460-9 I have become frail or an invalid because of my chest.
Indent64461-7 Exercise is not safe for me.
Indent64462-5 Everything seems too much of an effort.
Indent64463-3 My medication does not help me very much.
Indent64464-1 I get embarrassed using my medication in public.
Indent64465-8 I have unpleasant side effects from my medication.
Indent64466-6 My medication interferes with my life a lot.
Indent64467-4 I take a long time to get washed or dressed.
Indent64468-2 I cannot take a bath or shower, or I take a long time.
Indent64469-0 I walk slower than other people, or I stop for rests.
Indent64470-8 Jobs such as housework take a long time, or I have to stop for rests.
Indent64471-6 If I walk up one flight of stairs, I have to go slowly or stop.
Indent64472-4 If I hurry or walk fast, I have to stop or slow down.
Indent64473-2 My breathing makes it difficult to do things such as walk up hills, carrying things up stairs, light gardening such as weeding, dance, play bowls or play golf.
Indent64474-0 My breathing makes it difficult to do things such as carry heavy loads, dig the garden or shovel snow, jog or walk at 5 miles per hour, play tennis or swim.
Indent64475-7 My breathing makes it difficult to do things such as very heavy manual work, run, cycle, swim fast or play competitive sport.
Indent64476-5 I cannot play sports or games.
Indent64477-3 I cannot go out for entertainment or recreation.
Indent64478-1 I cannot go out of the house to do the shopping.
Indent64481-5 Please write in any other important activities that your chest trouble may stop you doing.
Indent64479-9 I cannot do housework.
Indent64480-7 I cannot move far from my bed or chair.
Indent64482-3 Which you think best describes how your chest affects you?

Fully-Specified Name

Component
PhenX - respiratory - quality of life protocol 091301
Property
-
Time
Pt
System
^Patient
Scale
-
Method
PhenX

Additional Names

Long Common Name
PhenX - respiratory - quality of life protocol 091301
Short Name
Resp quality of life proto

Survey Question

Source
PX091301

Basic Attributes

Class
PANEL.PHENX
Type
Clinical
First Released
Version 2.36
Last Updated
Version 2.66 (NAM)
Change Reason
Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
Panel Type
Panel

Member of these Panels

LOINC Long Common Name
62611-9 PhenX domain - Respiratory

Language Variants Get Info

Tag Language Translation
el-GR Greek (Greece) PhenX - αναπνευστικό - ποιότητα ζωής πρωτόκολλο 091301:-:Pt:^Ασθενής:-:PhenX
Synonyms: PhenX - αναπνευστικό - ποιότητα ζωής πρωτόκολλο 091301
es-MX Spanish (Mexico) PhenX - respiratorio - protocolo de calidad de vida 091301:-:Punto temporal:^ Paciente:-:PhenX
it-IT Italian (Italy) PhenX - respiratorio - qualità della vita, protocollo:-:Pt:^Paziente:-:PhenX
Synonyms: Panel PhenX paziente PhenX Punto nel tempo (episodio)
ru-RU Russian (Russian Federation) PhenX - дыхание - качество жизни протокол:-:ТчкВрм:^Пациент:-:PhenX
Synonyms: Точка во времени;Момент
zh-CN Chinese (China) PhenX - 呼吸系统 - 生活质量方案 091301:-:时间点:^患者:-:PhenX
Synonyms: Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 Consensus measures for Phenotypes and eXposures;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 PhenX - 呼吸系统 - 生活质量（生存质量、生命质量、生活品质、基本生活条件）方案 091301;Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 医嘱套餐 医嘱套餐类 医嘱套餐组 医嘱组 医嘱组.PhenX;组套（组合、医嘱组、套餐、套餐医嘱、医嘱套餐、组合申请、组合项目）.PhenX;Consensus measures for Phenotypes and eXposures;PhenX;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标;PhenX 医嘱组 医嘱组合 医嘱组合类 医嘱组套 医嘱组套类 医嘱组类 医疗服务对象;客户;病人;病患;病号;超系统 - 病人 多重;多重型;多重标尺类型;多重精度类型 套餐 套餐医嘱 套餐医嘱组 套餐医嘱组类 实验室医嘱套餐 实验室医嘱套餐类 实验室医嘱组 实验室医嘱组合类 实验室医嘱组套 实验室医嘱组套类 实验室套餐医嘱组 实验室套餐医嘱组类 实验室检验项目医嘱组合类 实验室检验项目组合类 时刻;随机;随意;瞬间 检验医嘱组合类 检验项目医嘱组合类 检验项目组合类 组 组合 组合医嘱 组合类 组套

LOINC Terminology Service (API) using HL7® FHIR® Get Info

CodeSystem lookup
https://fhir.loinc.org/CodeSystem/$lookup?system=http://loinc.org&code=62630-9
Questionnaire definition
https://fhir.loinc.org/Questionnaire/?url=http://loinc.org/q/62630-9