63032-7
PhenX - social networks protocol 211101
Trial
Status Information
- Status
- TRIAL
Term Description
The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.
Source: Regenstrief LOINC
Reference Information
| Type | Source | Reference |
|---|---|---|
| Citation | Consensus measures for Phenotypes and Exposures | U.S. Department of Health and Human Services, National Institutes of Health, National Institute for Mental Health, Institute for Social Research, & Indiana University. The Indianapolis Network Mental Health Study (INMHS), 1990-1991. |
| Article | Consensus measures for Phenotypes and Exposures | Perry, B. L., & Pescosolido, B. A. (2010). Functional specificity in discussion networks: The influence of general and problem-specific networks on health outcomes. Social Networks, 32(4), 345-357. |
| Article | Consensus measures for Phenotypes and Exposures | Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K.M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science and Medicine, 46(2), 275-286. |
| Article | Consensus measures for Phenotypes and Exposures | Pescosolido, B., & Wright, E. (2004). The view from two worlds: The convergence of social network reports between mental health clients and their ties. Social Science and Medicine, 58, 1795-1806. |
| Article | Consensus measures for Phenotypes and Exposures | Pescosolido, B. A., Wright, E. R., Alegr¿ M., & Vera, M. (1998). Social networks and patterns of use among the poor with mental health problems in Puerto Rico. Medical Care, 36(7), 1057-1072. |
| Article | Consensus measures for Phenotypes and Exposures | Stein, C. H., Rappaport, J., & Seidman, E. (1995). Assessing the social networks of people with psychiatric disability from multiple perspectives. Community Mental Health Journal, 31, 351-367. |
| Article | Consensus measures for Phenotypes and Exposures | Wright, E. R., & Pescosolido, B. A. (2002). "Sorry, I forgot": The role of recall error in longitudinal, personal networks studies. Social Networks and Health, 8, 113-129. |
Panel Hierarchy
Details for each LOINC in Panel LHC-Forms
| LOINC | Name | R/O/C | Cardinality | Example UCUM Units |
|---|---|---|---|---|
| 63032-7 | PhenX - social networks protocol 211101 | |||
| Indent54125-0 | Patient name | |||
| Indent67745-0 | From which name generator was this person mentioned? | |||
| Indent67746-8 | Person [PhenX] | |||
| Indent67747-6 | Section name generator | |||
| Indent46098-0 | Sex | |||
| Indent30525-0 | Age | R | a | |
| Indent67286-5 | If yes, what is his/her relationship to you? | |||
| Indent67653-6 | How close are you to this person? | |||
| Indent67654-4 | How often do you see or talk to the person? | |||
| Indent67655-1 | Do they trust doctors to take care of people's problems? | |||
| Indent67656-9 | Has this person done any of the following for you or helped you out? | |||
| Indent67657-7 | Does this person hassle you, cause you problems, or make your life difficult? |
Fully-Specified Name
- Component
- PhenX - social networks protocol 211101
- Property
- -
- Time
- Pt
- System
- ^Patient
- Scale
- -
- Method
- PhenX
Additional Names
- Short Name
- Social networks proto
Survey Question
- Source
- PX211101
Basic Attributes
- Class
- PANEL.PHENX
- Type
- Clinical
- First Released
- Version 2.36
- Last Updated
- Version 2.66
- Change Reason
- Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
- Panel Type
- Panel
Member of these Panels
| LOINC | Long Common Name |
|---|---|
| 63009-5 | PhenX domain - Social environments |
Member of these Groups Get Info
| LOINC Group | Group Name |
|---|---|
| LG51306-5 | SDOH |
Language Variants Get Info
| Tag | Language | Translation |
|---|---|---|
| es-MX | Spanish (Mexico) | PhenX - protocolo de redes sociales 211101: |
| it-IT | Italian (Italy) | PhenX - social network, protocollo: Synonyms: Panel PhenX paziente PhenX Punto nel tempo (episodio) |
| ru-RU | Russian (Russian Federation) | PhenX - социальные связи протокол: Synonyms: Точка во времени; |
| zh-CN | Chinese (China) | PhenX - 社交网络方案 211101: Synonyms: Consensus measures for Phenotypes and eXposures; |
LOINC Terminology Service (API) using HL7® FHIR® Get Info
Requests to this service require a free LOINC username and password. Below is a sample of the possible capabilities. See the LOINC Terminology Service documentation for more information.
- CodeSystem lookup
- https:
//fhir.loinc.org/CodeSystem/$lookup?system=http: //loinc.org&code=63032-7 - Questionnaire definition
- https:
//fhir.loinc.org/Questionnaire/?url=http: //loinc.org/q/63032-7
LOINC Copyright
Copyright © 2024 Regenstrief Institute, Inc. All Rights Reserved. To the extent included herein, the LOINC table and LOINC codes are copyright