63032-7

PhenX - social networks protocol 211101

Active

Term Description

The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.

Reference Information

Type	Source	Reference
Citation	Consensus measures for Phenotypes and Exposures	U.S. Department of Health and Human Services, National Institutes of Health, National Institute for Mental Health, Institute for Social Research, & Indiana University. The Indianapolis Network Mental Health Study (INMHS), 1990-1991.
Article	Consensus measures for Phenotypes and Exposures	Perry, B. L., & Pescosolido, B. A. (2010). Functional specificity in discussion networks: The influence of general and problem-specific networks on health outcomes. Social Networks, 32(4), 345-357.
Article	Consensus measures for Phenotypes and Exposures	Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K.M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science and Medicine, 46(2), 275-286.
Article	Consensus measures for Phenotypes and Exposures	Pescosolido, B., & Wright, E. (2004). The view from two worlds: The convergence of social network reports between mental health clients and their ties. Social Science and Medicine, 58, 1795-1806.
Article	Consensus measures for Phenotypes and Exposures	Pescosolido, B. A., Wright, E. R., Alegr¿ M., & Vera, M. (1998). Social networks and patterns of use among the poor with mental health problems in Puerto Rico. Medical Care, 36(7), 1057-1072.
Article	Consensus measures for Phenotypes and Exposures	Stein, C. H., Rappaport, J., & Seidman, E. (1995). Assessing the social networks of people with psychiatric disability from multiple perspectives. Community Mental Health Journal, 31, 351-367.
Article	Consensus measures for Phenotypes and Exposures	Wright, E. R., & Pescosolido, B. A. (2002). "Sorry, I forgot": The role of recall error in longitudinal, personal networks studies. Social Networks and Health, 8, 113-129.

Panel Hierarchy

Details for each LOINC in Panel LHC-Forms

LOINC	Name	R/O/C	Example UCUM Units
63032-7	PhenX - social networks protocol 211101
Indent54125-0	Patient name
Indent67745-0	From which name generator was this person mentioned?
Indent67746-8	Person [PhenX]
Indent67747-6	Section name generator
Indent46098-0	Sex
Indent30525-0	Age	R	a
Indent67286-5	If yes, what is his/her relationship to you?
Indent67653-6	How close are you to this person?
Indent67654-4	How often do you see or talk to the person?
Indent67655-1	Do they trust doctors to take care of people's problems?
Indent67656-9	Has this person done any of the following for you or helped you out?
Indent67657-7	Does this person hassle you, cause you problems, or make your life difficult?

LOINC Names Get Info

Fully-Specified Name: PhenX - social networks protocol 211101:-:Pt:^Patient:-:PhenX
Long Common Name: PhenX - social networks protocol 211101
Short Name: Social networks proto

Part Model Get Info

Component
PhenX - social networks protocol 211101
LP112585-7
- Analyte
  PhenX - social networks protocol 211101
  LP112585-7
  - Component Numerator
    PhenX - social networks protocol 211101
    LP112585-7
    - Component Numerator Core
      PhenX - social networks protocol 211101
      LP112585-7
    - Component Numerator Core Suffix
      NULL
  - Component Denominator
    NULL
    - Component Denominator Core
      NULL
    - Component Denominator Core Suffix
      NULL
- Challenge
  NULL
- Adjustment
  NULL
- Count
  NULL
Property
-
LP6769-6
Time
Pt
LP6960-1
- Time Core
  Pt
  LP6960-1
- Time Modifier
  NULL
System
^Patient
LP310005-6
- System Core
  NULL
- Super System
  Patient
  LP6985-8
Scale
-
LP7747-1
Method
PhenX
LP95333-8

Survey Question

: PX211101

Code System	Code	Code Text	Code Version
PhenX (Consensus measures for Phenotypes and Exposures)	211101	social_networks

Basic Attributes

Class: PANEL.PHENX
Type: Clinical
First Released: Version 2.36
Last Updated: Version 2.81 (MIN)
Change Reason: Release 2.81: Status: Changing PhenX Concept from Status = Trial to Active; Previous Releases: Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
Panel Type: Panel

Member of these Panels

LOINC	Long Common Name
63009-5	Deprecated PhenX domain - Social environments

Member of these Groups Get Info

LOINC Group	Group Name
LG51306-5	SDOH

Language Variants Get Info

Tag	Language	Translation
el-GR	Greek (Greece)	PhenX - κοινωνικά δίκτυα πρωτόκολλο 211101:-:Pt:^Ασθενής:-:PhenX Synonyms: - PANEL.PHENX PHENX PhenX - κοινωνικά δίκτυα πρωτόκολλο 211101 Pt Ασθενής
es-MX	Spanish (Mexico)	PhenX - protocolo de redes sociales 211101:-:Punto temporal:^ Paciente:-:PhenX
it-IT	Italian (Italy)	PhenX - social network, protocollo:-:Pt:^Paziente:-:PhenX Synonyms: Panel PhenX paziente PhenX Punto nel tempo (episodio)
ru-RU	Russian (Russian Federation)	PhenX - социальные связи протокол:-:ТчкВрм:^Пациент:-:PhenX Synonyms: Точка во времени;Момент
zh-CN	Chinese (China)	PhenX - 社交网络方案 211101:-:时间点:^患者:-:PhenX Synonyms: Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 Consensus measures for Phenotypes and eXposures;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 PhenX - 社交网络（社交网、社会网络、社会网）方案 211101;Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标医嘱套餐医嘱套餐类医嘱套餐组医嘱组医嘱组.PhenX;组套（组合、医嘱组、套餐、套餐医嘱、医嘱套餐、组合申请、组合项目）.PhenX;Consensus measures for Phenotypes and eXposures;PhenX;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标;PhenX 医嘱组医嘱组合医嘱组合类医嘱组套医嘱组套类医嘱组类医疗服务对象;客户;病人;病患;病号;超系统 - 病人多重;多重型;多重标尺类型;多重精度类型套餐套餐医嘱套餐医嘱组套餐医嘱组类实验室医嘱套餐实验室医嘱套餐类实验室医嘱组实验室医嘱组合类实验室医嘱组套实验室医嘱组套类实验室套餐医嘱组实验室套餐医嘱组类实验室检验项目医嘱组合类实验室检验项目组合类时刻;随机;随意;瞬间检验医嘱组合类检验项目医嘱组合类检验项目组合类组组合组合医嘱组合类组套

LOINC Terminology Service (API) using HL7^® FHIR^® Get Info

CodeSystem lookup: https://fhir.loinc.org/CodeSystem/$lookup?system=http://loinc.org&code=63032-7
Questionnaire definition: https://fhir.loinc.org/Questionnaire/?url=http://loinc.org/q/63032-7

LOINC Copyright

Copyright © Regenstrief Institute, Inc. All Rights Reserved. To the extent included herein, the LOINC table and LOINC codes are copyright © Regenstrief Institute, Inc. and the Logical Observation Identifiers Names and Codes (LOINC) Committee. See https://loinc.org/license for the full LOINC copyright and license.