Version 2.77

Status Information

Status
TRIAL

Term Description

The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.
Source: Regenstrief LOINC

Reference Information

Type Source Reference
Citation Consensus measures for Phenotypes and Exposures U.S. Department of Health and Human Services, National Institutes of Health, National Institute for Mental Health, Institute for Social Research, & Indiana University. The Indianapolis Network Mental Health Study (INMHS), 1990-1991.
Article Consensus measures for Phenotypes and Exposures Perry, B. L., & Pescosolido, B. A. (2010). Functional specificity in discussion networks: The influence of general and problem-specific networks on health outcomes. Social Networks, 32(4), 345-357.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K.M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science and Medicine, 46(2), 275-286.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B., & Wright, E. (2004). The view from two worlds: The convergence of social network reports between mental health clients and their ties. Social Science and Medicine, 58, 1795-1806.
Article Consensus measures for Phenotypes and Exposures Pescosolido, B. A., Wright, E. R., Alegr¿ M., & Vera, M. (1998). Social networks and patterns of use among the poor with mental health problems in Puerto Rico. Medical Care, 36(7), 1057-1072.
Article Consensus measures for Phenotypes and Exposures Stein, C. H., Rappaport, J., & Seidman, E. (1995). Assessing the social networks of people with psychiatric disability from multiple perspectives. Community Mental Health Journal, 31, 351-367.
Article Consensus measures for Phenotypes and Exposures Wright, E. R., & Pescosolido, B. A. (2002). "Sorry, I forgot": The role of recall error in longitudinal, personal networks studies. Social Networks and Health, 8, 113-129.

Panel Hierarchy

Details for each LOINC in Panel LHC-Forms

LOINC Name R/O/C Cardinality Example UCUM Units
63032-7 PhenX - social networks protocol 211101
Indent54125-0 Patient name
Indent67745-0 From which name generator was this person mentioned?
Indent67746-8 Person [PhenX]
Indent67747-6 Section name generator
Indent46098-0 Sex
Indent30525-0 Age R a
Indent67286-5 If yes, what is his/her relationship to you?
Indent67653-6 How close are you to this person?
Indent67654-4 How often do you see or talk to the person?
Indent67655-1 Do they trust doctors to take care of people's problems?
Indent67656-9 Has this person done any of the following for you or helped you out?
Indent67657-7 Does this person hassle you, cause you problems, or make your life difficult?

Fully-Specified Name

Component
PhenX - social networks protocol 211101
Property
-
Time
Pt
System
^Patient
Scale
-
Method
PhenX

Additional Names

Short Name
Social networks proto

Survey Question

Source
PX211101

Basic Attributes

Class
PANEL.PHENX
Type
Clinical
First Released
Version 2.36
Last Updated
Version 2.66
Change Reason
Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
Panel Type
Panel

Member of these Panels

LOINC Long Common Name
63009-5 PhenX domain - Social environments

Member of these Groups Get Info

LOINC Group Group Name
LG51306-5 SDOH

Language Variants Get Info

Tag Language Translation
es-MX Spanish (Mexico) PhenX - protocolo de redes sociales 211101:-:Punto temporal:^ Paciente:-:PhenX
it-IT Italian (Italy) PhenX - social network, protocollo:-:Pt:^Paziente:-:PhenX
Synonyms: Panel PhenX paziente PhenX Punto nel tempo (episodio)
ru-RU Russian (Russian Federation) PhenX - социальные связи протокол:-:ТчкВрм:^Пациент:-:PhenX
Synonyms: Точка во времени;Момент
zh-CN Chinese (China) PhenX - 社交网络方案 211101:-:时间点:^患者:-:PhenX
Synonyms: Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 Consensus measures for Phenotypes and eXposures;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 PhenX - 社交网络(社交网、社会网络、社会网)方案 211101;Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 医嘱套餐 医嘱套餐类 医嘱套餐组 医嘱组 医嘱组.PhenX;组套(组合、医嘱组、套餐、套餐医嘱、医嘱套餐、组合申请、组合项目).PhenX;Consensus measures for Phenotypes and eXposures;PhenX;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标;PhenX 医嘱组 医嘱组合 医嘱组合类 医嘱组套 医嘱组套类 医嘱组类 医疗服务对象;客户;病人;病患;病号;超系统 - 病人 多重;多重型;多重标尺类型;多重精度类型 套餐 套餐医嘱 套餐医嘱组 套餐医嘱组类 实验室医嘱套餐 实验室医嘱套餐类 实验室医嘱组 实验室医嘱组合类 实验室医嘱组套 实验室医嘱组套类 实验室套餐医嘱组 实验室套餐医嘱组类 实验室检验项目医嘱组合类 实验室检验项目组合类 时刻;随机;随意;瞬间 检验医嘱组合类 检验项目医嘱组合类 检验项目组合类 组 组合 组合医嘱 组合类 组套

LOINC Terminology Service (API) using HL7® FHIR® Get Info

CodeSystem lookup
https://fhir.loinc.org/CodeSystem/$lookup?system=http://loinc.org&code=63032-7
Questionnaire definition
https://fhir.loinc.org/Questionnaire/?url=http://loinc.org/q/63032-7