Form Coding Instructions

The following questions refer to your heart failure and how it may affect your life. Please read and complete the following questions. There are no right or wrong answers. Please mark the answer that best applies to you

Source: John Spertus, MD, MPH

86483-5 Please indicate how much you are limited by heart failure (shortness of breath or fatigue) in your ability to do the following activities over the past 2 weeks. Showering or bathing

Observation ID in Form

1a

Observation Required in Panel

Required

Form Context

Heart failure affects different people in different ways. Some feel shortness of breath while others feel fatigue

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Showering or bathing was limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Showering or bathing was limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4532-9

AnswerCodeScoreAnswer ID
Extremely limited1LA27701-4
Quite a bit limited2LA27702-2
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Not at all limited5LA27707-1
Limited for other reasons or did not do the activity6LA27708-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86474-4 Please indicate how much you are limited by heart failure (shortness of breath or fatigue) in your ability to do the following activities over the past 2 weeks. Walking 1 block on level ground

Observation ID in Form

1b

Observation Required in Panel

Required

Form Context

Heart failure affects different people in different ways. Some feel shortness of breath while others feel fatigue

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Walking 1 block on level ground was limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Walking 1 block on level ground was limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4532-9

AnswerCodeScoreAnswer ID
Extremely limited1LA27701-4
Quite a bit limited2LA27702-2
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Not at all limited5LA27707-1
Limited for other reasons or did not do the activity6LA27708-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86477-7 Please indicate how much you are limited by heart failure (shortness of breath or fatigue) in your ability to do the following activities over the past 2 weeks. Hurrying or jogging (as if to catch a bus)

Observation ID in Form

1c

Observation Required in Panel

Required

Form Context

Heart failure affects different people in different ways. Some feel shortness of breath while others feel fatigue

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Hurrying or jogging (as if to catch a bus) was limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Hurrying or jogging (as if to catch a bus) was limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4532-9

AnswerCodeScoreAnswer ID
Extremely limited1LA27701-4
Quite a bit limited2LA27702-2
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Not at all limited5LA27707-1
Limited for other reasons or did not do the activity6LA27708-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86479-3 Over the past 2 weeks, how many times did you have swelling in your feet, ankles or legs when you woke up in the morning?

Observation ID in Form

2

Observation Required in Panel

Required

Fully-Specified Name

Component
Swelling in your feet, ankles or legs when you woke up over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Swelling in your feet, ankles or legs when you woke up over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4534-5

AnswerCodeScoreAnswer ID
Every morning1LA27719-6
3 or more times a week, but not every day2LA27720-4
1-2 times a week3LA14506-2
Less than once a week4LA27722-0
Never over the past 2 weeks5LA27723-8

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86481-9 Over the past 2 weeks, on average, how many times has fatigue limited your ability to do what you want?

Observation ID in Form

3

Observation Required in Panel

Required

Fully-Specified Name

Component
Fatigue limited your ability to do what you wanted over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Fatigue limited your ability to do what you wanted over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4536-0

AnswerCodeScoreAnswer ID
All of the time1LA6154-4
Several times per day2LA27729-5
At least once a day3LA27730-3
3 or more times per week but not every day4LA27770-9
1-2 times per week5LA13834-9
Less than once a week6LA27722-0
Never over the past 2 weeks7LA27723-8

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86472-8 Over the past 2 weeks, on average, how many times has shortness of breath limited your ability to do what you wanted?

Observation ID in Form

4

Observation Required in Panel

Required

Fully-Specified Name

Component
Shortness of breath limited your ability to do what you wanted over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Shortness of breath limited your ability to do what you wanted over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4536-0

AnswerCodeScoreAnswer ID
All of the time1LA6154-4
Several times per day2LA27729-5
At least once a day3LA27730-3
3 or more times per week but not every day4LA27770-9
1-2 times per week5LA13834-9
Less than once a week6LA27722-0
Never over the past 2 weeks7LA27723-8

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86485-0 Over the past 2 weeks, on average, how many times have you been forced to sleep sitting up in a chair or with at least 3 pillows to prop you up because of shortness of breath?

Observation ID in Form

5

Observation Required in Panel

Required

Fully-Specified Name

Component
Sleep sitting up in a chair or with at least 3 pillows to prop you up because of shortness of breath over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Sleep sitting up in a chair or with at least 3 pillows to prop you up because of shortness of breath over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4539-4

AnswerCodeScoreAnswer ID
Every night1LA14806-6
3 or more times a week, but not every day2LA27720-4
1-2 times a week3LA14506-2
Less than once a week4LA27722-0
Never over the past 2 weeks5LA27723-8

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86488-4 Over the past 2 weeks, how much has your heart failure limited your enjoyment of life?

Observation ID in Form

6

Observation Required in Panel

Required

Fully-Specified Name

Component
Enjoyment of life limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Enjoyment of life limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4542-8

AnswerCodeScoreAnswer ID
It has extremely limited my enjoyment of life1LA27745-1
It has limited my enjoyment of life quite a bit2LA27746-9
It has moderately limited my enjoyment of life3LA27747-7
It has slightly limited my enjoyment of life4LA27748-5
It has not limited my enjoyment of life at all5LA27749-3

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86489-2 If you had to spend the rest of your life with your heart failure the way it is right now, how would you feel about this?

Observation ID in Form

7

Observation Required in Panel

Required

Fully-Specified Name

Component
How would you feel if you had to spend the rest of your life with your heart failure the way it is right now
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

How would you feel if you had to spend the rest of your life with your heart failure the way it is right now [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.61 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4543-6

AnswerCodeScoreAnswer ID
Not at all satisfied1LA27750-1
Mostly dissatisfied2LA24976-5
Somewhat satisfied3LA27752-7
Mostly satisfied4LA24974-0
Completely satisfied5LA27754-3

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86491-8 Please indicate how your heart failure may have limited your participation in the following activities over the past 2 weeks. Hobbies, recreational activities

Observation ID in Form

8a

Observation Required in Panel

Required

Form Context

How much does your heart failure affect your lifestyle?

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Participation in hobbies, recreational activities limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Participation in hobbies, recreational activities limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4545-1

AnswerCodeScoreAnswer ID
Severely limited1LA27761-8
Limited quite a bit2LA27760-0
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Did not limit at all5LA27764-2
Does not apply or did not do for other reasons6LA27765-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86492-6 Please indicate how your heart failure may have limited your participation in the following activities over the past 2 weeks. Working or doing household chores

Observation ID in Form

8b

Observation Required in Panel

Required

Form Context

How much does your heart failure affect your lifestyle?

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Participation in working or doing household chores limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Participation in working or doing household chores limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4545-1

AnswerCodeScoreAnswer ID
Severely limited1LA27761-8
Limited quite a bit2LA27760-0
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Did not limit at all5LA27764-2
Does not apply or did not do for other reasons6LA27765-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86493-4 Please indicate how your heart failure may have limited your participation in the following activities over the past 2 weeks. Visiting family or friends out of your home

Observation ID in Form

8c

Observation Required in Panel

Required

Form Context

How much does your heart failure affect your lifestyle?

Source: John Spertus, MD, MPH

Fully-Specified Name

Component
Participation in visiting family or friends out of your home limited by heart failure over the past 2W
Property
Find
Time
2W
System
^Patient
Scale
Ord
Method
KCCQ

Long Common Name

Participation in visiting family or friends out of your home limited by heart failure over the past 2 weeks [KCCQ]

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.61
Last Updated
Version 2.63 (MIN)
Order vs. Observation
Observation

Normative Answer List LL4545-1

AnswerCodeScoreAnswer ID
Severely limited1LA27761-8
Limited quite a bit2LA27760-0
Moderately limited3LA6460-5
Slightly limited4LA9605-2
Did not limit at all5LA27764-2
Does not apply or did not do for other reasons6LA27765-9

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]
71941-9Kansas City Cardiomyopathy Questionnaire [KCCQ]

86924-8 Overall summary score [KCCQ-12]

Term Description

KCCQ-12 overall summary score is the sum of responses from all 12 items, with lower scores indicating more significant disease impact. Changes in the summary score are predictive of changes in health status for patients with heart failure.

Fully-Specified Name

Component
Overall summary score
Property
Score
Time
Pt
System
^Patient
Scale
Qn
Method
KCCQ-12

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.63
Last Updated
Version 2.63 (ADD)
Order vs. Observation
Observation

Member of these Panels

LOINCLong Common Name
86923-0Kansas City Cardiomyopathy Questionnaire - 12 item [KCCQ-12]

Example Units

UnitSource
{score}Example UCUM Units